KUMJ | VOL. 18 | NO. 3 | ISSUE 71 | JULY-SEPT. 2020
Translation with Cross-cultural Adaptation of Cerebral Palsy Quality of Life Questionnaire for Children into Nepali and its Psychometric Properties
Shrestha N, Suwal A, KC S, Adhikari SP
Abstract: Background
Cerebral Palsy Quality of Life questionnaire for children primary caregiver version is
the widely used condition specific outcome measure which assesses the wellbeing of
the child. It has been translated to many languages and shows excellent psychometric
properties. Availability in Nepali would facilitate the use in clinical practice and
research in Nepali population.
Objective
The objective of this study was translation with cross-culturally adaption of Cerebral
Palsy Quality of Life questionnaire for children primary caregiver version into Nepali
and assess its psychometric properties.
Method
Cross-cultural adaptation was performed using forward and backward translation
protocol. Pretesting was done on six participants to confirm that the original concept
was preserved. The Nepali version of questionnaire was administered twice for data
collection. The feasibility, sensitivity, internal consistency and test-retest reliability
was determined.
Result
Culturally adapted Nepali version showed good feasibility only the domain “Access
to service” had a highest missing score related to use of the special equipment,
attending kindergarten and applying for respite care. Floor and ceiling effect were
< 15% in all the domains except in few items of “Pain and impact of disability” and
“Social well being and acceptance”. Test retest reliability (0.82 – 0.91) and internal
consistency (0.68 – 0.84) was good. There were weak association of domains with
the gross motor functional classification system level.
Conclusion
Cross-culturally adapted Nepali Cerebral Palsy Quality of Life questionnaire for
children primary caregiver was developed. It demonstrates good psychometric
properties confirming to assess quality of life of children with Cerebral palsy in Nepal.
Keyword : Cerebral palsy, Cross-cultural adaptation, Primary care giver, Quality of life questionnaire, Reliability
